The Rainbow

Our rainbow baby (A rainbow baby is born shortly after the loss of another baby. Its meant to signify the rainbow after a storm.) was born in June. My husband and I found that we are carriers for an extremely rare genetic condition after the unexpected passing of our affected first born son, Liam James, in 2014. After some defeating additional tries, we decided to go through IVF to try and have another child. After two stim rounds, and three transfers, we were pregnant with a precious baby girl.


Our rainbow miss Quinn Ann observing the bear we had made from her big brother Liam's jammies.

 I documented the entire pregnancy - how it varied from my pregnancy with Liam, the different emotions it brought on, different scares, etc. I liked being able to compare the two experiences. This pregnancy I was more aware of what was happening inside my body and I felt so close to this child so soon. Especially after the scary points in the pregnancy, I was really happy to just have her growing inside me, just the two of us. It felt safe and I loved it. I didn't know what to expect with her birth. I knew it would be hard, I knew it would feel different, I just didn't know what to expect. I made sure to have private time set aside, with just the three of us, to feel everything I needed to feel after she arrived. The fears I had during the csection were more than I expected. The weight of how much everything could change so quickly for better or worse was too much for me to envision. I struggled with calming myself down.

Once they delivered her, and showed her to me, I just felt relief and numbness. I just didn't expect what happened next. It was surreal. I was so happy that she was out and safe, crying and breathing. She passed all of her tests and checks perfectly. She was brought into our recovery room with us and we just held her and stared at her. We did skin to skin. We let her latch to my breast to feed. She was perfect. I was so in love with her, immediately. I was so grateful that she was ours and here and healthy. I had all of the typical mom feelings for her new child. What I didn't expect was to also feel so much fear and detachment.

It took me awhile to realize that's what I was feeling. I'm sure it was brought on by grief, hormones, and horrific memories, but it was hard to understand. I would hold this perfect little child and feel distant from her. You can imagine the wave of guilt that also came with that... I was afraid to fully accept and let myself feel that she was mine. With Liam, It felt more and more like he was God's and just on borrowed time with us. I know we are all Gods children, but the fear of her being taken from us too, today, tomorrow, years from now, it was too unbearable for me to think of. I was afraid to fully feel all of my love for her because of how much it would hurt if anything would ever happen to her. I had a wall up. I love her, held her, smelled her, soaked her up but with limits. I'd look at her and want her so much but be afraid to accept that she was here and I had her and that she was healthy.

It took a couple days to understand what I was feeling and why I was feeling it. I thought maybe it was post pardon depression, and I guess in a way it could have been. Once I had a few days to figure it out, it was a matter of convincing myself that that's not a way to fully love. It wouldn't be fair to either of us. I had to tell myself, once again, that this is something we don't have control of. I had to look at it as every single second we have with her is a blessing and I need to open my heart all the way, despite the dark possibilities. Its the only way to love anyone. She deserves all of me, not part of me.

The first few days were hard. Sleeping the first night while in the hospital was hard. I was so terrified she wouldn't be here when I woke up. I had to talk to a nurse about it so I could feel comfortable enough to sleep. I was reassured how to lay her in her bed (even though I know how to lay her in her bed), and she agreed to check on us often. Every breath terrified me. Every moment made me question if it was "normal" or not. The fears of accidents that could happen started running through my head. When we came home I could not have been more relieved to be at our own home and to get to share it with her. But with that comfort came more fear about the fact that we were no longer surrounded by nurses and no longer had a safety net of any kind. Then when family and friends started visiting, my anxiety about germs and sickness went through the roof. I was becoming so overprotective and worried that it was hard for me to enjoy it. Even those that I knew were great with kids, even after watching them wash their hands and keep their distance, it just felt so scary.

Then we went through a period during the second week where I became so obsessed with her breathing (fast breathing) and all of the new sounds she would make. If there was a cough, gag, or coo I would think something was wrong. I took her temperature every time she did anything new, again, automatically assuming it was a symptom or just something out of the normal. It was almost like I as waiting for something bad to happen. After being reassured by amazing supportive medical professionals that she was perfect and healthy I could stop stressing about it and wait for the next symptom. At the end of each feeding I would worry that she didn't get enough, or had too much and would surely be throwing it up. At the end of each day I would feel like I didn't do a good enough job. On the days that we had to leave the house for doctor appointments I would feel so terrible for even having to take her out in the heat at all (even though the car would be started and cooled, she would have a fan on her constantly, and I had a cold bottle of water to use to cool her also if needed). Now that I'm sitting here today, at almost one month of her life, I can finally see how silly these things were. Its not at all to say that anything new still doesn't put me on edge a bit, but its so nice to see her developing and thriving and getting to enjoy it. Its good to be in a place where I can enjoy the good things instead of focusing on what could go wrong. I'm learning too, that as the days go by, there are more and more good things, more reassurance, more confidence, and less insecurities.

I'm pretty sure I will always be more dramatic, overly cautious, and slightly stressed out when it comes to our little baby girl. I know a level of this is true about any parent. I'm just not sure where that bar is set since we didn't get to experience normal with Liam. As each day passes I feel more and more reassured that we are making the right choices with her. Its been amazing to see a little more of her personality each day. I'm familiar with her different cries and noises and what they usually mean. I also accepting that she is ever changing and that almost every time I feel like I have the hang of something, she will grow and change and I have to constantly adapt to keep up with her demands.

I cant believe its almost been a month with her already. There's no measurement large enough to express the love I have for her. I still lay at night just watching her breathe. I just sit and stare at her during our morning feedings trying to figure out how she is so absolutely perfect. Shes growing and changing every single day. I melt when she stares into my eyes and I'm unable to look away first. I'm obsessed with her face, her smells and her sounds. I cant wait to see who she grows up to be. I'm so anxious to watch her hit all of her milestones. I want to spend every single one of my days with her. I'm so unbelievably thankful to be her mother. I have no idea what our future holds, but I do know that we were blessed with an amazing, beautiful and perfect little child. She has filled a part of our hearts again that have been hurting for a very long time. I will always have a place in my heart that's missing for Liam. At the same time, I'm honored and blessed to be able to experience motherhood again, especially to our sweet little Quinn. Its a complicated mix of conflicting emotions that aren't commonly felt together. I'm getting more and more used to them though and again, just beyond thankful to be where we are in life today.

Thank you for everyone that helped us along the way to this dream come true! <3